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Now he is back home, back at school and back to his chatty self.
Kai's mother Michele Boardman said: "From the moment he was allowed home, all he's talked about is being able to fundraise and help other poorly boys and girls
"Now he is looking forward to a marvellous Christmas.
"He's not completely healthy but much better than what he was. Compared to a year ago, he is brilliant.
"The amount of surgery he went through must have been so tough, but he never stopped smiling.
"He'd watch Mamma Mia every day in his hospital bed, singing along to all the songs.
"All the staff would laugh because he had his headphones plugged in and didn't realise how loudly he was singing."
Kai was diagnosed with a condition called chiari malformation when he was four, meaning lower parts of his brain had been pushed into his spinal chord.
Doctors initially said they would not operate unless the effects became life-threatening, but when his condition began to deteriorate in 2014 and he began to develop headaches, pins and needles and became sleepy, concerned Michelle requested an MRI scan.
Results revealed a build up of pressure on his brain, and doctors decided surgery was necessary after all.
"He also suffers problems with his balance, but he doesn't let it bother him. Every time he falls down he gets right back up again.
"His friends at school even brought in bandages for him in case he had any knocks."
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A young boy suffered from a rare condition which led to his brain slipping into his spine.
Kai Diawne
A nine-year-old schoolboy, Kai Diawne suffered from a rare condition which led to his brain falling into his neck.
He suffered from the illness for years – doctors think he could have been born with it. This year, he had nine operations to cure it, spending around 20 hours in surgery.
However, Mirror Online reports that, he now is the healthiest he has ever been and is excited about his first Christmas with his head intact. He had an operation to remove a bone at the back of his skull relieving pressure on his brain, in January this year.
But a number of complications saw him rushed into theatre nine times during his six week stay at Sheffield Children's Hospital.
He suffered from the illness for years – doctors think he could have been born with it. This year, he had nine operations to cure it, spending around 20 hours in surgery.
However, Mirror Online reports that, he now is the healthiest he has ever been and is excited about his first Christmas with his head intact. He had an operation to remove a bone at the back of his skull relieving pressure on his brain, in January this year.
But a number of complications saw him rushed into theatre nine times during his six week stay at Sheffield Children's Hospital.
Kai in hospital
Now he is back home, back at school and back to his chatty self.
Kai's mother Michele Boardman said: "From the moment he was allowed home, all he's talked about is being able to fundraise and help other poorly boys and girls
"Now he is looking forward to a marvellous Christmas.
"He's not completely healthy but much better than what he was. Compared to a year ago, he is brilliant.
"The amount of surgery he went through must have been so tough, but he never stopped smiling.
"He'd watch Mamma Mia every day in his hospital bed, singing along to all the songs.
"All the staff would laugh because he had his headphones plugged in and didn't realise how loudly he was singing."
Kai while recovering in hospital
Kai was diagnosed with a condition called chiari malformation when he was four, meaning lower parts of his brain had been pushed into his spinal chord.
Doctors initially said they would not operate unless the effects became life-threatening, but when his condition began to deteriorate in 2014 and he began to develop headaches, pins and needles and became sleepy, concerned Michelle requested an MRI scan.
Results revealed a build up of pressure on his brain, and doctors decided surgery was necessary after all.
His mum, a 46-year-old woman who is a full-time carer for her son said: "He got to the point where his brain couldn't drain fluid,"
"He also suffers problems with his balance, but he doesn't let it bother him. Every time he falls down he gets right back up again.
"His friends at school even brought in bandages for him in case he had any knocks."
Cheryl Davidson, community fundraiser at The Children's Hospital Charity said: "Kai is an ongoing and amazing supporter of ours, and we are so grateful for everything he has done and continues to do.
"We need as many people as possible to join Kai, sign up for Make it Better Day and raise money to transform our amazing hospital."
"We need as many people as possible to join Kai, sign up for Make it Better Day and raise money to transform our amazing hospital."
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